Central Registry for Rare Diseases

Last updated: 2022-12-21 17:00

Welcome at the technical documentation pages for the project "Central Registry for Rare Diseases (CRRD)", provided by the service healthdata.be (Sciensano).

These pages provide information about the technical processes of the project. The following sections are (will be) provided:

  • General project information
  • The data collection

For scientific information of the project, please contact the primary organization that oversees implementation of project (see section "General project information").