The FAIR portal of healthdata.be (https://fair.healthdata.be) is an open-data platform based on the DKAN open-source component on top of the open-source Drupal CMS (Content Management System). FAIR is an acronym of Findable, Accessible, Interoperable and Reusable and originates from academics and private stakeholders that came to the conclusion that a minimal set of guiding principles and practices would help them to more easily discover, access, appropriately integrate and re-use, and adequately cite, the vast quantities of information being generated by contemporary data-intensive science.

The FAIR principles guide healthdata.be in its ambition to facilitate the re-use of the patient registries and administrative databases in Belgium. Off course with respect for the privacy of the patient, the healthcare professional and the medical confidentiality. With the FAIR portal healthdata.be provides an overview of existing databases with Belgian health and health care related data and aims to steadily make this data discoverable and available to the public to increase public health knowledge.

johanvanbussel Sat, 09/24/2022 - 15:21

Access fair.healthdata.be

Access fair.healthdata.be

The FAIR portal of healthdata.be is publicly accessible via a web browser. The web address https://fair.healthdata.be will take you to the portal's main page.

On the FAIR portal, a specific page is created for the "COVID-19 Barometer: General Practitioners" project. When you enter "barometer GP" in the search bar, and push the "Go" button, you will find the project in the list of search results.

If you click on the project title, you will be directed to the project page on the FAIR portal of healthdata.be.

The current available resources are mainly so-called metadata files. Resources about the number of registrations, unique study subjects, ... are also planned to be made available on this page.

This documentation is being updated regularly. We try to provide as correct, complete and clear as possible information on these pages. Nevertheless, if you see anything in the documentation that is not correct, does not match your experience or requires further clarification, please create a request (type : request for information) via our portal (https://sciensano.service-now.com/sp) or send us an e-mail via support.healthdata@sciensano.be to report this documentation issue. Please, do not forget to mention the URL or web address of the page with the documentation issue. We will then adjust the documentation as soon as possible. Thank you!

johanvanbussel Sat, 09/24/2022 - 15:21

Fair.healthdata.be Support Services

Fair.healthdata.be Support Services

The Service Desk of healthdata.be (Sciensano) helps users of our applications and services and deals with requests and problems when they arise.

The Service Desk focuses on those services run by our IT Services (HD4DP, HD4RES, healthstat.be,...) and helps you with accounts and passwords. For questions about the content and objective(s) of the projects, we kindly refer to the managing research organizations.

For most efficient processing of your request, we advise you to use our service portal: https://sciensano.service-now.com/sp.

Please find below our support window hours:

johanvanbussel Sat, 09/24/2022 - 15:51

How to report an incident

How to report an incident

The healthdata.be service (Sciensano) processes each incident report according to a standard operating procedure (SOP). A public version of this SOP "HD Incident Management Process" is also available on this portal docs.healthdata.be.

To submit an incident related to projects and applications in production and facilitated or managed by Sciensano's healthdata.be service, you must first log into the HD Service and Support portal: https://sciensano.service-now.com/sp

After the login step, you will arrive at the main page of the portal.

On the main page, you must select "Get Help".

A new page with the title "Create an incident" will appear.

You can now document your incident or problem by providing the following information:
Please indicate the urgency of resolving your issue based on its criticality to the business.

Please indicate the type of problem you are experiencing.

When the problem type "Application" is selected, two additional fields appear: "Project Name" and "Application".

Please select the appropriate information.

Please describe clearly and briefly (1 sentence) the subject of your problem.

Please describe the problem in detail. The following aspects are important for us to understand and solve the problem:

  • a description of the actions you want to perform but fail to perform (e.g. provide us with a field name, a validation rule, a button, etc.)
  • a description (if possible) of the sequential steps you follow to use the service or the application of healthdata.be for which you need support;
  • a brief description of the technical problem you are experiencing (e.g. error messages)

We strongly recommend that you add a screenshot describing the problem (IMPORTANT: do not provide us with patient data!).

You can add the screenshot by clicking on "Add attachments".

On the right side of the form, the mandatory information items of the incident form are listed. When these fields are completed, their names disappear from the "required information" box.

The form can only be submitted if all required fields are filled in, by pressing the green "Submit" button.

If all required fields have not been completed, a warning message will appear at the top of the form.

In addition, missing mandatory fields will be highlighted in green.

When the incident form has been successfully submitted, a preview of your submission appears in a new screen.

On the right side of the screen you will find the details, including the incident number.

On the left side of the screen, you will find a chronology of your incident processing, starting with your creation.

johanvanbussel Sat, 09/24/2022 - 15:53